| Albany,
NY |
This
is possibly the best explanation we have found concerning CCSVI
- from a clinic in Albany New York which has been doing the treatment
since last fall. Very well researched - please note the list of
59 scientific references at the end of the article.
http://www.communitycare.com/Practices/Interventional_Radiology/CCSVI_background.asp
http://www.communitycare.com/Practices/Interventional_Radiology/CCSVI.asp
|
| BLOGS |
Good
collection of ccsvi information
http://www.facebook.com/notes.php?id=110796282297&style=1&start=0&hash=90403d94f4ad3878555b5416a947e6aa
List
of people who have had the treatment
http://www.thisisms.com/ftopict-8346.html
Sandra Birrell blog -- Vein Musings
http://www.veinmusings.blogspot.com/
This
is a recent blog started for people who have NOT had any improvement
http://www.facebook.com/group.php?gid=127400123964022&v=wall&ref=mf
Here are two CANADIAN blogs with the latest news
http://www.facebook.com/pages/CCSVI-at-UBC-MS-Clinic-Information-and-Support/182832983940
http://www.facebook.com/ccsvi.ms.toronto.canada
|
| CCSVI
Alliance |
http://www.ccsvi.org/ |
| CCSVI
at BC MS clinics |
This
Facebook page was started by Sandra Birrell when news of CCSVI
first hit Canadian media. Sandra wanted to create a page to connect
with other patients of the UBC MS clinic. As the first Canadian
Facebook group, the page quickly grew to include all BC clinics
and, indeed, people from across Canada and around the world.
http://www.facebook.com/pages/CCSVI-at-UBC-MS-Clinic-Information-and-Support/182832983940 |
| CCSVI
Fundraising |
We
started an online store with Cafe Press with inspirational CCSVI
messages placed on t-shirts, mugs, teddy bears, stickers, note
cards, and so on. Words were taken from people's responses to
"What does CCSVI mean to me" ~ other images were created
by people affected by CCSVI.
ALL
profit goes to CCSVI research. We initially donated almost $600
to UBC and now will only donate to treatment based CCSVI research.
One link for each of five different designs:
|
| Dr.
Ashton Embry --
Direct-MS |
http://www.direct-ms.org/ |
| Dr.
Haacke's website on MS, CCSVI, and MRI imaging |
http://www.ms-mri.com/index.php |
| Dr.
Sclafani's Q&A on CCSVI |
This
is Dr. Sclafani's thread on ThisIsMS:
http://www.thisisms.com/ftopict-11433.html |
| International
Society of Neurovascular Disease |
http://www.isnvd.org |
| Multiple
Sclerosis Resource Centre (UK) |
http://www.msrc.co.uk/index.cfm?CFID=2962525&CFTOKEN=97469533 |
| ThisIsMS
CCSVI forum |
http://www.thisisms.com/forum-40.html |
| Treatment
locations |
These
change daily and no website is up to date. Here are a few to look
at when seeking treatment:
http://www.ccsviclinic.com/
http://www.multiplesclerosissurgery.com/where-tested-ccsvi.html
Pacific
Interventionalists (call their office number -- (949) 221-0129
-- toll free does not work outside the U.S.)
http://www.pacificinterventional.com/about_ccsvi.html
The
Hubbard Foundation
http://www.hubbardfoundation.org/research.html
|
| University
of Buffalo |
Robert
Zivadinov, MD, PhD
Associate Professor of Neurology, University of Buffalo, NY
Director, Buffalo Neuroimaging Analysis Center at Jacobs Neurological
Institute
http://www.mastersofms.com/index.php |
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